Tuesday, February 12, 2019

2019 brings new goals

A dream written down

They say a dream written down becomes a goal.
I gave this some serious thought this year. Resolutions seem almost pointless, I don’t know many people that really stick to them for the year. Purely based on the fact that we are mid way through February shows how much regard I have for them!
So I thought that maybe it was time to consider what my hopes and dreams are for the future rather than just 2019. Chanel some energy in to hobbies to allow for a new focus for the year ahead.
There will always be the obvious ‘Lose weight’ that will remain a goal for most of us, even if it is just the post-Christmas bulge that we have to work off until the one year we realise that 3 months of hard work is really not worth that extra 20 quality street or the bread slathered in pate and dripping in butter…. Surely not just me????
But this time I really need to focus on it, 2 stone gone for good. I have done it before but because I took my eye off the ball I need to do it again. I will remember how far I have come though and celebrate the fact I am never going to need to start over but the only way to make sure I don’t is to get back in control now.
And 5 weeks in to the New Year I am feeling good, it’s going to be a slow and long process but I’ll stick with it. Memories on Facebook is enough to keep me on the straight and narrow!

Scarily accurate!

I have always loved to write. As a child I loved playing teachers, writing stories and reading. To a certain extent that followed me in to adulthood. I love nothing more than writing lists, making notes and just finding any excuse to write at all. I just love to put pen to paper. I adore stationary. Buying a new notebook or pen really is one of life’s pleasures for me, something so small and almost insignificant in its cost but it always brings me so much joy. *heart eye emoji*
And then there is my blog, I have found this to be almost therapeutic. What started off as a snapshot of our adventures as a family became a place where I could open up honestly about what life was really like, the impact and the journey moving forward. The response from people has been overwhelming and I really felt like I had connected with people. Those people I had been worried I’d not offered enough support to in their time of need. I even shared this with my computer-phobic Dad which was a huge deal for me. I felt like I was exposing my grief to him when it was probably the last thing he needed, but he told me it bought him some comfort and it opened up communication about how we both felt. Before now, we skimmed over our true feelings in a bid to offer support and strength to each other while never really showing any sign of weakness. Allowing him to read this was certainly easier than talking about it.
And with each post I make and time, it does feel like I have less reason to be so sad. Hopefully I am turning a corner now and writing has certainly helped me to do that. And now I would love to grow my blog, reach a further audience. Its finding the right way to do this, so if you have any suggestions or tips, they'd be much appreciated!
This year though i'd like to write more. Not just blogs but to write about all sorts of things. To do this I spent a huge amount of time in November and December compiling daily writing prompts. I did a revision card for each month with a list of prompts for both Rob and I. I bought Rob a diary that is large enough to write a page a day and myself a new journal and on the 1st January, we began. The questions vary in their depth and seriousness. Some are light, some more thought provoking. As I wrote them out I had clear answers for the questions in mind already but in most cases, as i have come to write i have changed my mind and written about something else. 
We have slipped a little, in that we are not making time to write daily but I have found I am enjoying spending an hour doing 5-7 days at a time. And catching up on Game of Thrones before the new series starts in April has become a bigger priority of course! But I really hope we can make it all the way through.

This year I'd like to make more of my time. Use it more wisely, stop wasting it on social media, pointless tasks or sitting on my backside. I need this extra time to be more proactive. To allow me to make time for me, time for Rob and time for the children as well as family and friends. 
I want to find time to exercise until I love it again. I want to make the boy disconnect from electronics and spend time with me after school, I want to pluck my eyebrows once in a while, paint my nails and put face cream on every day if i decide to. I want to be on top of the housework so the weekend is not consumed by it. I want to make more time to be organised and declutter the house. I'd like to eat before 8.30pm every night, spend the evening with Rob doing whatever we feel like and just maybe go to bed and read a book.

What are your goals for the year ahead? Have you made a resolution and still going strong?

Tuesday, February 5, 2019

Review 1 of 12

And just like that January is over, well i say 'just' like it flew by but in reality I am sure I can't be the only person who felt this month went on for around 95 days?? With 6 weeks between the extremely generous 'early payday' and the next pay day on the 31st, its been a tough slog for a lot of us.

And we've been promised snow but we've had to put up with a few frozen mornings and sore fingers from constantly refreshing the weather pages.

And the house looked so very sad without the Christmas decorations, and there is a huge lack of chocolate for breakfast, in fact chocolate of any kind is banned now the new year diet has started. 

But January has been a good month, a busy month but a great start to the year. We finished the front room, OK so finished is a bit of a stretch but after being out of action for several months, it is nice to have a room that is beginning to feel homely. And my new arm chair is a little bit of heaven, only to look at though, i don't want any bottoms defacing my new chair!

Then there were birthdays, Rob turned 39. It was a fairly low key (maybe i'll do something more exciting next year for the big 4-0!) celebration. But we blew the cobwebs away at Cannock Chase on the Zog walk. The children found den building more interesting than the Zog trail, but it was nice to get out in the fresh air. It feels like it has been a while since we were outdoors. Then a pub lunch on the way home. It was just really nice to be out of the house. Not that I have any issue with winter hibernation.

I did make a promise for Rob's birthday though, I finally agreed to sit and endure watch Lord of the rings. I was almost proud to say i'd never watched the films before. They feel like the sort of MUST watch films people bang on about, like Star wars (Never watched it) or The Godfather ( also never watched it!) and many other classics(that i've probably not watched) We were to start on Friday and watch one a night for the weekend. Now i knew they were long films, but seriously?? If the film needs 2 discs, its too long. And actually if you think about it, the trilogy is basically one film so that's actually 6 discs! I reckon (and i might) I could remake it in under 2 hours. Just hand back the ring already Frodo! In the end I couldn't hack it. We watched a film a weekend for 3 weeks, taking each disc change as a perfect time to stop. I just can't cope with long films. But I did it, and you know what?? It really wasn't too bad, but don't tell him that for god's sake! 

Just a couple of days later, we had reason to celebrate,  Rob's divorce was finalised. Drinking Champagne on a school night felt fabulously indulgent, even if it did just remind me that I really do not like Champagne. And i know its an occasion that brings with it some sadness but it has allowed us to finally pick a date and start making some plans for our wedding. You'll have to wait for the date until we have met with the venue. But i am sure over time i'll be sharing lots of the finer details here.

With a spring in our step, the very next day we booked to go to Euro Disney. I have been so desperate to go back but it felt like an expense we could not justify. With the house needing work and the wedding to plan and pay for, it didn't seem like a good use of money. But the children will only remain young for such a short time, F especially will soon be wanting to spend less and less time with us as a family i'm sure. And making memories as a family is so important. We took the leap. So now if any of you have any ideas for keeping 3 children under 12 entertained on a coach for 12 hours i'll happily take any you can throw my way! For my reservations, as soon as i'd paid the deposit the excitement began to build. I am going to be terrible for the next few months. I am loving buying little Disney bits for the big reveal. Top to toe Disney!

I was able to spend time with friends this month. It feels like it has been a while. So while F and his mate bounced the morning away, Sarah and I put the worlds to right over really good coffee - Minus the cake due to the January diet... 19 days in and still going! 

The following day my 2 bridesmaids came to the Ricoh wedding fair with me. Now the last fair i attended was not great, taking children with us was not my greatest idea but also if you don't have a date, forget it! No one wants to waste their time talking to you without a date, fair enough I suppose. But now with a date in mind it was much more successful and it was nice to get the bridal party together. I came home full of excitement and lots of ideas.

Another weekend and another birthday. A weekend full of family and celebrations and an 11 year old!! How on earth F could be turning 11?? It seems as if no time has passed since he was born but that he has always been here. The day started with breakfast with friends, Its completely acceptable to eat pancakes and ice cream when its your birthday so that's just what he did! 

He then went to watch his first football match at the Ricoh with Rob and his Dad. He absolutely loved it. The following day we had my Dad over and the whole of Rob's family for tea and cake. Lovely time had by all but it is safe to say i'm not good at meeting the demands of 6 children all at once! I took great solace in the drive to Rugby and back again to take Dad home for some 'Quiet time'.

It's actually amazing how much you can fit in to 96 days hey? Its been a fun month and February seems like it has potential to be just as good. More birthdays, a lot more family time and hopefully some Algarve sunshine!

Wednesday, January 30, 2019

Parenting through grief

I think this may be the most honest i will be, both with myself and with the general viewing public.

The reality is parenting while my whole world changed has been one of the toughest parts of this whole process. I am sure to many this will seem very unfair, very irrational and almost cruel but it is my true and honest view.

There are of course days that bring joy, days where it is easy to be a Mum. Days where there is no thought needed, I just 'Mum' successfully. The house is tidy, the kids are entertained, happy and well watered.

But on the other days, I simply can't be the parent I want to be. I feel like there are several reasons for this.

Firstly my patience levels do not exist some days. I don't know why but I can wake up and just know that even the simplest of requests are going to be too much for me and for whatever reason I can't shake that. If I knew how to stop it, to put it to one side and do the job I am here to do then I would but for whatever reason once I start there is no stopping it. It is consuming.

Secondly, some days I feel like I can't be a parent without Mum's influence. I still called her to ask the most ridiculous questions, still sought some reassurance from her that I was making the right decisions on parenting, cooking, washing and about a million other ridiculous adulting dilemmas

How can you be a Mum without a Mum? Almost like all that has come before the moment she left is forgotten, all the things she told me, taught me and offered me have gone. And I know this is completely absurd, I am well aware that her not being here doesn’t change the fact the she was my parent for 35 years. 

She taught me all I know, she helped me to be the parent I am, but that support from her has gone. My parenting crutch, the sensible voice of reason when I feel guilty for telling them off, confiscating something or banning the ipad/ipod/tv! But also the first call I make to celebrate the good with. Parent’s evenings, school achievements and general moments of happiness and joy. She was the person that reassured me no one would die from a sniffle, that if your awake at 6am child was still asleep at 7.30am you LEAVE them be, who took F for injections because I was too much of a wimp to do it myself, oh and the dentist!! (Yesterday I held F’s hand while he had a tooth removed, Mum… you know that will have almost finished me off!!!)

And I know I have Rob now, and all number of friends and family who will pacify my nonsense parental neurosis but it’ll never be the same. Only my Mum can tell me to stop being an idiot and not cause offence. Only my Mum can understand the sense of pride I feel for their Grandson and agree when I tell her how crazy they can drive me.

There are moments where it all feels inconvenient, as if their needs somehow get in the way of my misery. Days where I’d like to stay in bed and cry if I feel the urge but food must be cooked, outside activities catered for, school uniform to be washed, rooms to be cleaned. Little people to look after and protect. Days like this are few thankfully but maybe I need to ask for help and take the time I feel I need or is keeping going the better option?

There are the days where I forget and just carry on as normal and then it hits me again and I feel immense guilt for enjoying myself, enjoying the children and enjoying the happiness I’m surrounded in. And I know, I really do know that it is not what my Mum would want for me at all, in fact she’d be really bloody cross with me.  What I wouldn’t give to hear her tell me off!

I now know that I cannot let my grieve take over, dictate my mood, my relationships, take from me the person I am. I can’t allow it to overwhelm and consume me.

I need to accept help, I need to be honest about what is going on rather than utter those words … ‘I’m fine’

I need to embrace family life and the normality that brings. The fun, the laughter as well as the demands and general daily activities because I have to take control again. I know it’ll always be there but it’s about how I deal with it that will save me from myself.

Credit to Linsey G for this one 

Sunday, December 30, 2018

Happy new year?

I am hearing a lot that people can’t wait for 2018 to be over and that 2019 has to be a better year for us all.

There has been a huge amount of sadness in 2018 so I can see where people are coming from. I have said many times myself that I’ll be glad to see the back of this year.

But as new year fast approaches, I can hand on heart say I am not ready to leave 2018 behind me.

If I were to write a review of 2018, on paper there are many wonderful moments that made it a great year.

Firstly I moved to be with the love of my life, to start a huge new chapter for the boy and I, to become a family.

I started a new job, a job I enjoy that has taught me a huge amount.

Rob asked me to marry him, and this is without doubt the best moment of 2018. It confirmed to me what I already knew, that this was the man I was going to spend the rest of my life with and I was so excited for our future together.

I said yes to the dress!! I mean how exciting is that?!?

There was so much family time this year. I’d of preferred to have had this time under better circumstances but I was grateful for the time we had together. Seeing family who travelled as far as the other side of the world to be here with us when we all needed it most was so special.

We made so much progress on the house we are so lucky to call home. 

And I found happiness with family and friends at a time where it felt like there could be none.

I am so grateful to have had a year where so many wonderful things happened.

There are some days when I am sure I can be forgiven for forgetting the positives in amongst all the sadness that I feel. But writing this down helps me to see that there is always good.

New year is always a time for reflection, and I’ve never really been a fan in honesty. I’m sure we all stop and think about the positive and negative moments of the year. I am sure we all look back at the resolutions we made and wish we’d stuck with them, wish that we’d made more time for family, for friends or for fun or that we’d just done more of what we wanted to do. 

We all see a new year as a new start, a time to make much needed changes and have new focuses.

Believe me when I say I have plenty of those. Plenty of new hobbies to try, resolutions I’ll try to stick with and plans to keep.

But right now I am not ready to say goodbye 2018. And it’s for simple reasons.

I can’t let go of this year that changed my whole life. I can’t say goodbye again, because that’s how it feels. Like I’m having to say goodbye to Mum all over again. As if walking in to 2019 is going to actually change that she’s not here sounds ridiculous but it is exactly how I feel.

I am not ready to say ‘My Mum died last year’ it makes it sound like such a long time since she was here with us. 

And I know that I’m not ready to accept that so much has changed in such a small amount of time. 

I have no powers to make time stop though, so I’ll face 2019 with hope. Hope that it is going to be a better year, hope that with time things continue to get a little easier, hope that my resolutions work out and hope that future is brighter.

Tuesday, December 25, 2018

The C word

And then just like that, All those plans that you have made vanish. Some may say that life gets in the way but to me that makes it sound like an inconvenience to me.

Life should never be seen like this and this Summer has shown me this in a way I wish it hadn’t. In a way so painful that it is not fair.

When I took that call from my Mum, I think I already knew why she was calling and what she was going to say. I don’t know why but I can remember saying to her at the time that I knew she had cancer. In fact I’d had a conversation that morning with my friend. I’d said to her then that I felt that Mum was ill, really ill. I even mentioned the C word to her, convinced that that was the news awaiting us. Now I’d usually be the queen of positivity but it just felt all wrong.

It still hit me like a train, I didn’t think that was actually a ‘thing’ but believe me it very much is. It’s a train that is showing no signs of slowing down, it just hits you over and over again until you feel like you can’t breathe. You can feel the world around you slowing to a stop, because right now, in this moment, you know that life will never quite be the same again. No matter what the outcome turns out to be.

Mum and Dad came over that day to see us, we didn’t tell F, just left him to play. We talked about it a little bit, I called my Brother and Mum contacted one of her sisters. We almost made light of it, joked about her wearing a wig and that sort of thing. And just for a minute you tell yourself that it’ll all be ok because she is here and she is not unwell so it can’t possibly be right. Then you remember that she only had the scan 4 hours ago and they’d been able to confirm the worst almost immediately, in fact they were so sure they put her back in for a second look.

And this is how you spend the next few weeks, waiting and hoping and then feeling nothing but despair. Life kind of continues as normal, but it is always there, niggling at you. I speak to Mum daily to check if she’s heard anything, if she is feeling anything she didn’t feel before, if maybe she does feel that she has this cancer inside of her and that it is all true, or just hoping that they’ve called and told her it was a mistake. The waiting for more news is terrible, you’re given a rough ‘You’ll be seen in a week’ and 2 weeks later the wait continues.

We were away camping when Mum finally saw someone, who was unable to tell her much without the obvious biopsy. So we begin the next long wait. We’d only been away for 5 days but we visited Mum when we got back and she’d lost so much weight. She was really beginning to look as ill as we feared she was. She was in fairly good spirits though and it was lovely to sit and talk to her while the men all disappeared to the pub (Rob asked my Dad if he could marry me but that’s a whole other story!) She was not able to hide from the pain and discomfort she was in. Watching her struggle to even sit up straight in her chair was not nice to see. You wish with everything you have to be able to take the pain away.

A few days and a few falls later and Mum is in hospital. You feel a sense of relief because surely that means that you’ll start getting some much needed answers and a day turns in to a week which turns in to two and you feel no closer.

But you visit every day, sometimes driving to collect Dad and then back to the hospital and back to drop Dad before going home, and you feel like you need to be a superhero to keep going. There are times I’ve driven down the M6 and had no recollection of doing so. You go to work, race home, go for a visit, race home and so it continues. And you do it because you want to, I wanted to see her every day and you keep going because what she is going through is so much bigger than you. The thoughts and worries don’t actually go away, but you do begin to think that she will be ok. Because surely if she wasn’t they’d be doing something by now right?

Eventually the biopsy took place and Mum was finally home after the best part of a month. The waiting continued though and it seemed to have no end. Life slowed down a little though in this time and we could all breathe a little easier. Mum was home, she was comfortable in her home if not in her body. She had a hospital bed and chairs to help her move around.

Dad was playing the superhero with such finesse that it put iron man to shame. He looked after her with such love and compassion, nothing was too much for him. He cooked and cleaned, made soup, did the shopping, he was a thoroughly modern man! I was in awe of the way he dealt with it all and remained his usual chipper self. I’m not sure I’d of coped so well.

In herself mum had her good and bad days, and she never showed any anger towards the waiting, the same can’t be said for me I’m afraid. Sometimes it was an overwhelming rage. I hated the fact that Mum had just become a number, She is not a number, she is my Mum. But the logical part of my brain tells me that this is how it is and we can’t change it and we must just wait.

Our birthdays soon arrived and it certainly didn’t feel like a time to celebrate, but I had arranged for a wedding dress shop to bring some dresses to Mum’s house so she could help me choose between them. I knew how important it was to her that she was part of this process and it meant the world to me that she was able to see this and know that I was engaged.
It was a difficult day, despite the happy moment of saying yes to the dress. It was what no one said that hung in the air. Knowing that this might be the only time my Mum got to see me in a wedding dress was utterly heart-breaking, and I can’t say that this thought ever left my mind, and in fact it’s very much still there now. Sometimes I think about how hard it will be to put that dress on, tainted almost. But then I remind myself just how special it was to have Mum’s approval of something so hugely important to us both.

The other hugely noticeable thing was how much Mum appeared to be struggling now, Her speech was slow and appeared difficult. She was eating even less than previous, less than half a meal a day and she was beginning to need more and more sleep. It was clear that something needed to happen. She couldn’t be left like this.

Over the next few days Mum really took a turn for the worse. I’d seen her on Sunday and by Tuesday the change was obvious. She was now struggling to be awake, her hands were unable to hold on to things like her phone or a drink and she seemed to be becoming a little confused and disorientated.
Macmillan nurses had been helping Mum and Dad for a while now, they’d been in to see them at home and at the hospital and were a huge help in getting Mum the things she needed to be able to come home and be comfortable. So when they came in again after our birthday weekend and on seeing Mum decided that it would be worth admitting her to Myton Hospice we were on-board. They suggested that Mum just needed a week, it would offer some respite to Dad and would allow the hospice to make some changes to Mum’s medication which they hoped would make her more comfortable but also improve some of the symptoms she was experiencing.

It wasn’t until she was taken in on Thursday 26th July that I realised what was actually happening. Myton hospice as far as I was aware is where people go to die. How could we be sending her here? Were we admitting defeat, giving up? That is certainly how it felt. But again you give yourself a good talking to and realise that this is the best thing for Mum and they’ve said a week so that’s what it’ll be. Plus she’d fallen again at home this morning so this was safer.

We saw Mum at the hospice the following day, Dad, Finley and I. It was a place where we instantly felt at home, it was cosy and the staff were all friendly. They were very honest and open and were horrified to hear that Mum had yet to even see a consultant about any results or the next steps.
They also seemed to agree that once her medication was sorted, she’d be able to come home. So I certainly began to feel that this was a good move for Mum and for us all.

Those first few days were difficult, Mum was so upset and disorientated. I found it very hard to watch her like this, but I told myself it would pass, it was temporary. This was just short term. But it made it no easier, watching her shout out in her sleep, calling out to people who were not there and gasping for breath.

It was that first day where I had the most clear ‘vision’. I’ve not talked about this too much but as I was standing over Mum about to say goodbye for the day, someone walked in the room and stood next to me. Now there was no one there, but it was as clear as day. I could not see the person but their presence was overwhelming. I didn’t feel scared, in fact I really didn’t feel anything. I decided it was my imagination and that was that. Until Mum suddenly took notice and began talking to this ‘person’ next to me. What she said made no sense at all but the recognition on her face told me all I needed to know to confirm that I was not imagining this in anyway. She might have been away with the fairies temporarily but she certainly knew who she was talking to and seemed to take some comfort from this.

Just a few days later and Mum was back, she was brighter, had the full use of her hands back and was eating slightly more. The hospice had been fantastic with Mum but with us as well. She had a stream of visitors and F and I visited daily and it fast became a home away from home. F had won over all the staff and volunteers and often earnt himself a cheeky little biscuit or 2! The staff had chased up Mum’s results and arranged for us to meet with a consultant on her behalf. We hoped we’d finally get some answers. Once again though we hit a brick wall. As Mum could not attend he really couldn’t tell us very much. Another appointment was scheduled a few days later with the oncologist. Myton agreed that Mum was not well enough to attend but wrote to the consultant giving permission from them and Mum for us to attend.

On the day, we spoke to Mum to see what she’d like us to ask, and as determined as ever, Mum wrote her own lists of questions to ask. The consultant was helpful and at least gave us some answers to some of our questions. It is just a shame they were not the ones we were hoping for.
He started by showing us the scan that Mum had, the tumor was obvious, even to my untrained eye. He explained that at this point there was no treatment that could be done, although he said if Mum was strong enough he could do a course of radiotherapy but this would be for pain management only. He met with Mum at Myton and spent a lot of time with her going over the results. He was extremely patient with Mum and between him and Myton they promised that they would manage her pain levels better.

It was on this day that a nurse from Myton took me to one side and told me that if Rob and I were serious about having a wedding style blessing with Mum there we needed to do it that week as they were no longer sure she’d be with us within the week. Now you feel like this news should floor you, but you nod and say ‘yep ok’ and get on with your day. Now I don’t know if this is because you think it must be utter nonsense, or if maybe acknowledging it means it is more likely to be true or if it is just a case that you have to carry on regardless of what they tell you because you are fighting every single day already to just get through. Who knows what it is but I just had to keep on, make a plan, get busy. And that’s what I did. By the following day the wedding blessing was all organised for the Thursday.
I’d made no mention of this to Mum until the plan was in place. Part of me worried about her reaction. Would she feel like we’d given up, that there was no hope for her? I was so relieved when Mum seemed to be genuinely excited, but i am under no illusion that this was mainly thanks to a surprise visit from her Sister from New zealand!

Mum had arranged with the team at Myton to have a bath, not just any bath but a fancy Jacuzzi style bath and to have her nails done in preparation! We’d had orders for which top she wanted to wear and she needed her Dior perfume.

She was so chatty and bright all day, it will be a day I remember fondly. I was in Liverpool for the day with F and Rob and spent most of the day chatting via text to Mum. Her messages made sense and it had been a while since I could say that. She was happy and breezy and just like my Mum, I was so happy.

The following day we celebrated our wedding blessing with my parents, Robs, the children and 2 of my Aunties. Mum looked glowing, I even thought she was wearing a little make up and anyone who knew my Mum would tell you that she never wore make up! But it was just in fact a natural glow, it made the day even more special.
I had vowed that I would not cry, mainly because I’d paid good money for the make up I was wearing that day but also because I’d done enough of that. I didn’t want to remember any part of that day for sadness at all. So even when I felt overwhelmed with love for Rob, I couldn’t falter, this was  A NO CRY DAY!

It was a beautiful day, I am so glad we did it. I am so pleased that My parents were able to meet Robs, I am so glad that Mum was alert and able to enjoy herself and it could not have been more perfect.

Still in my lovely love bubble the following day I couldn’t wait to see Mum. We spent the morning chatting as if there was not a thing wrong with her. We were together for a good few hours before she began to struggle. I watched the colour drain from her face and her eyes get heavier and heavier. By the time Dad and Catherine arrived Mum could barely stay awake to say hello. They almost didn’t believe that she’d been so bright that morning, but I know she was and right now that was the best feeling in the world. It was enough to make me forget all the shit and just enjoy my Mum again. To feel like for a moment I didn’t have to worry anymore, she was still very much with us and that is where she would stay. And there was not a single part of me that didn't believe that 100% in that moment.

Another Monday rolled round and another nurse is telling me to prepare for the worst this week. I wondered how many more times I’d have to listen to those words. How many more times I’d have to tell the family this before it became a reality. Or do I just ignore it because they’ve said it before and we are still here, Mum is still holding on. But in reality she was fading. She wasn’t awake much now and when she was she was finding it difficult to talk. Her food intake was down to nothing at all and even drinking was becoming more and more difficult for her. We questioned the Doctors as to why they weren’t putting her on a drip, why they weren’t feeding her. They explained that it would not help and could in fact make her feel worse. If they gave her fluids that fluid could build up where it shouldn’t because her poor body currently doesn’t know what to do with it and the same with food. Her body would hold on to it rather than absorbing it. The body is kind to us in these late stages the Doctor tells us, it stops feeling thirst or hunger because it doesn’t need either of those things. I almost want to laugh at this, what part of this is kind? No part of this whole process has been kind.

We discussed with the Doctor our concerns about how this could have taken so long to diagnose. The consultant said the bone cancer Mum has is secondary to Kidney cancer Mum had removed and needed no further treatment on in 2012. So that meant that for 6 years this cancer had been growing and causing difficulties for Mum. I can’t remember a time now where she didn’t struggle to walk and move around. She has been using a walking stick for many years and it was a contributing factor in her taking early retirement. The difficulty she had walking put pressure on her heart and caused this to be an ongoing issue.

Over the last 5 or 6 years she’d had various appointments, scans, x-rays, MRI’s and even a few diagnoses and some treatment. There was talk of a hip replacement when she was a little older as well. So in all this time and all these specialists and appointments how can this possibly be missed? I feel like I need to know why. I felt as though we’ve been robbed of time with Mum, time for her to have treatment and fight this. I told myself a lot at the time that actually we have had 5 or 6 years that maybe we wouldn’t have done, that her body has been fighting this for a long time, she has fought to walk, and fought to keep going every single day with no idea what was really going on.

It was clear to us all that this week was not going to be kind to Mum. You could no longer communicate for long periods with her and sometimes she was not aware that you were there, who had been or who was coming to visit. The Wednesday night was one that will stay with me forever. I think it was the first time I’d let Mum see how broken I was. I had spent so long pretending this wasn’t really happening, so long trying to remain positive and strong for her. I felt like she didn’t need to know how I felt as it wasn’t about me. This was about her and how she felt. And while she was struggling to stay upbeat, I felt I had to do that for her. I had to keep my emotions in, at least until I was in the car, or at home because she didn’t need to see it. But that day I couldn’t anymore. Maybe it was because I had friends with me rather than family and I didn’t feel the need to stay strong for them like I did for everyone else. And I lay my head on Mum and cried. I told her how much I loved her and that I knew she had to go. I even told her it was time, I told her to go to sleep. She told me she loved me, it was clear as day. But those were the last words she spoke to me. Which is of comfort to me but also absolutely breaks me. Even writing this now I am in absolute pieces. I am so glad that I had that moment with her. I do feel now that it was important for her to see and hear just how special she is to me and that more than anything in the world I loved her with everything I had.

We were all there every day now. Another Monday arrived and I felt like we’d won. Those nurses had been wrong every time they’d said to prepare for the worst. I felt like sticking to fingers up at them and telling them they were wrong! We spoke with her Doctors who said ‘Anytime now’ but that didn’t really mean much, we’d heard it before. I even said to Rob and some friends that Monday that I think its weeks yet. I’d even dared to say that ‘you wouldn’t put a dog through this, its not fair on her’ on more than one occasion and I swear I’d do anything to take that back now, as if taking it back would suddenly change the outcome.

Tuesday 21st August 6.50am, even when my phone rang at that time in the morning I didn’t really think this could be it. So I arranged for the girls to be collected by their Grandparents and hurried F to get dressed so we could head to the hospice. I packed a bag of anything I could find at that bleary eyed time of the day. Boxes of lego, reading book, Crisps, biscuits and drinks. That’ll do for now. We’d have loads of time to fill today. Rob was away with work but it was fine because I’d find someone who could collect F later. I knew I wouldn’t be leaving the hospice any time soon and that was fine as I was right where I wanted and needed to be. I wasn’t going anywhere, I’d be there to see my Mum take her last breathe if that was what was going to happen. Not that I’d really thought this was about to happen.

So when I see Dad rushing towards me as I go to sign in at the hospice and he says those words ‘She’s gone’ the world stopped. I could feel it stop, I felt everything in that moment change forever. F seemed to have no idea what had just happened so I told him, I could see his little heart break and he cried, it was just for a moment though.

I didn’t know what I was supposed to do with this information, how was I supposed to process it? I just had an overwhelming need to see her, I had to be with her. Now you hear people say it all the time ‘They looked so peaceful’ and I’ll be honest I always thought it was a crock! But she did look peaceful, it’s more than just asleep though and it was clear she was gone no matter how much I wanted this not to be true. I sat beside her and cried and begged for her to come back to us. I told her I was wrong, I wasn’t ready for her to go so she just needed to come back to us.

I spent time with her before ringing my Brother and Rob. And then contacted some of my friends, Mum’s sisters were there and notifying family, I even called the registry office while Dad called some of their friends.
We all spent some time with Mum both alone and together. F was kept busy while we were in there. He had decided that we needed to remain positive as that is what Nanny would want. He and Catherine wrote a list of the things he loved about his Nanny, the things he enjoyed to do with her. He then joined us all in Mum’s room and read through his list. Together we came up with some more things to add to it. It felt like the most natural unnatural thing in the world, all sitting around Mum lying so peacefully. You could almost forget for a moment.

Eventually Myton said they needed to move Mum. Well I didn’t want them to move her, I didn’t want to leave her here. But I knew of course that I had to, I just wasn’t ready to go yet. They allowed us some more time but eventually we took to the family room so they could do the necessary.

Even now the staff treated her with such dignity and respect. She had a blanket and pillow with her that we wanted to keep hold of as they’d been made for her. I went through with the nurse to collect them and she spoke to Mum and told her she was just going to take them from her but that they’d get her another blanket to keep her warm. I was so pleased to have witnessed that, I needed to know that she was going to be well taken care of. They cleaned Mum and eventually moved her, I wanted to see her go, be with her on this journey but I know for the family it was too much. I honestly could have stayed with her, got in to the bed with her and held her forever and I’d never really understood it when people chose to spend time with their loved ones after they’d past. But it felt like the most natural thing in the world being with her and it felt like that was it now. No more time with my beautiful Mum. The nurse bought through the top Mum was wearing for us to take home and wash. I could smell my Mum on that top and could for a week or so after, I slept in it that night and it remains in my pillow case unwashed and will stay there, It bought me some real comfort over the first few days.

We left Myton all together that day and went for lunch. It almost didn’t feel like the right thing to do but in all honesty, we weren’t really sure what we were supposed to do. But at the restaurant it was really busy, the staff were running around like mad things and everyone was chatting away as if nothing had happened this morning. My world had stopped turning at not a single person seemed to care. The birds still sang and the sun still shone, people were doing their shopping or going to work and carrying on as if nothing had happened. How can life carry on around us when the world was stood still? I could not understand that, didn’t want to. But I needed to remind myself every second that she was my Mum, most people didn’t even know her so why would they feel like I do, why shouldn’t they laugh and joke and chat as if nothing happened when in fact it is just another Tuesday to them!

We went home and Catherine and F kept busy cooking while Dad and I let people know what had happened. The phone seemed to constantly ring. Everyone saying such lovely things about Mum and how sorry they are and it genuinely helps. I wanted to know that people were feeling it like I was, that I wasn’t alone. It was comforting to hear these things from people. I knew how amazing she was and I am glad other people knew that as well.

But then a really tough call came in, It was from the Donor organisation. We knew it was coming but it is not an ideal conversation to be having just a few hours after you’ve said goodbye. But I am pleased to say that Mum was able to donate her eyes. I just hope they can be of use to someone soon.

You kind of hit autopilot and just cruise along. Each day becomes about just getting through. You keep busy in the hope this will help. And I suppose to an extent it does but at times it feels like you are just putting off the pain and misery you feel. I stayed positive for Dad, and F bounced around trying to keep us all smiling. And now I come to recall this time, I find it very difficult to remember what happened. The day Mum died is etched in my mind in such scarily clear clarity but everything else is just a block of time. I know we visited the funeral home, registered her death, and collected some of her belongings from Myton hospice and I even went away to centre parcs for a week. But all of that just seemed like more waiting to me. Just as we had been waiting since May.

I struggled so much to process what was going on. Even now, almost 3 months later I can’t possibly accept that she has really gone. I play the last few days out over and over and wonder if I should have said this, or if I should have done that, maybe I should not have gone home, maybe I should have asked Rob to come back from his work trip. There are an awful lot of shoulda woulda coulda’s during that time and maybe they’ll always be there.
Losing a parent is like losing a part of you. My Mum was the core, everything I did was with her blessing, it’s her that I would seek comfort from, advice on the most important and the most sublime of things in life, her approval meant more to me than any other and to think that was gone, just like that was too hard to process.

And you’re aware that you are shutting down a little bit, maybe you’re pushing people away, bottling up those tears or being less patient than you normally would but it feels like it is beyond your control. You wake up in the morning and you already feel tired, you go through the motions, stick to a routine and plod on. And some days it seems a little easier and other days 10 times harder. Sometimes you find a reason to laugh or to smile and then this little part of you says ‘Stop doing that, you’re supposed to be sad’ as if smiling or laughing or having any kind of fun means that you can’t be grieving.

And everyone is great, really great. Friends keep calling and texting even if you don’t pick up, Rob was still there each day no matter how shut off I was and F was still remaining positive. Family still support you through their own grief and words of kindness drop through the door every day. But despite all that you still want to fall apart, tell the world to leave you alone, but you don't. You get up and get on.

And then you plan the funeral, and you have to be quite mechanical about it all because the minute you let any emotion in, its game over. And you are sick of crying, sick of saying sorry to whoever is with you when the tears start to flow but sick of trying to hold it in. And you choose music, Mum had given us some ideas but then we wanted something significant to us, those left behind, something that came close to telling the world how we felt through music. We wrote the eulogy, and it’s then you realise that you needed more time with Mum so you could ask her more about her childhood, more about growing up and college and how she felt about Dad and getting married and what it was really like to be our Mum. But it’s too late. It’s not until they are no longer here that you realise just how much more you want to know about them.
but somehow it comes together and you finally understand how final this act is. And then the wait continues, a week of waiting for the day to arrive. You wait because people tell you it’ll feel easier after the funeral, so you hold on to that. Hope that they are right because you can’t cope with this feeling anymore.

During this time I began a journal, somewhere I could write to Mum and tell her how I was feeling, talk to her and hopefully eventually share the good as well as the bad. I found it really helpful putting pen to paper. It was our place. I’d beg her to come back to us, tell her how much I loved her and shared the journey we were on without her. Even now I try to write to her once a week at least. 

In this week I found myself doing things but having no recollection of doing them. Driving to places and not remembering the journey, talking to people and having no idea what we’d talked about, I’d take F to school and then come home and forget where he was, I’d go to the gym but old ladies were talking about going to see their Mum’s and the selfish part of grief makes you think ‘why do they have their Mum at their age and I don’t?’ And then I’d feel guilty even thinking like that. 
I’ve never really experienced guilt in any form, but my god now it was overwhelming. I felt guilty for being sad, guilty for being happy, guilty for crying but guilty for not crying, I’d feel guilty for not doing something round the house or when I couldn’t face normal things, I’d feel guilty about letting people down, about not being able to manage work. I even felt guilty getting a sick note from the doctors for gods sake! I felt like nothing I did would ease this guilt. And there were times where I felt guilty about being alive! Nothing but time seemed to bring an end to those feelings.

We’d decided to go and see Mum on the Friday before the funeral. It was something I vowed I’d never do, but now I was faced with it I had to go, I needed to see her face one more time. Needed to say goodbye to her properly. I’d been told to expect the worst so I think I was surprised to find it easier than I expected. But I knew immediately that Mum wasn’t there anymore, she didn’t look peaceful, she looked uncomfortable. I just needed to go. The funeral home came in and re-positioned Mum and I went back to say my goodbyes. This time she did look peaceful and I left there feeling like I’d done what I came to do and I felt a little more ready to face the funeral. 

Now I’ve heard people describe funerals as being a beautiful send off and I just thought people were being nice, but Mums really was beautiful. She had such a huge turn out. Although as we followed Mum in I didn’t notice anyone except for my friends husband weirdly. I could not have told you who was there and who wasn’t. It was only when we sat down that I was even aware of my family sat behind us. I held on to my Dad as if my life depended on it and held F while he sobbed. I have to say I was so pleased to see him finally cry, it worried me how ok he was being. 
The service went by so quickly and hearing the eulogy bought to life by the celebrant and hearing people cry and laugh along with us bought it to life. I cried so much that day that it hurt, but the wake bought some happier moments. A time to talk and share stories and meet some of Mums old school friends and work colleagues. Time for family to laugh and love. As funerals go we could not have asked for more. I think Mum would have been happy to.

And then it feels like the healing process has to start. There are calls to make, things to organise and people to notify. And it keeps me occupied and my mind busy which is no bad thing. But inside i still feel like the world is not turning as it was before. 
I begin to smile a bit more and ache a little less on the good days, but the bad days are just as hard. But i smile again because I feel like that’s what’s expected of me and I feel like it’s the only way to make it through the darkness.

There are times where all I want to do is call you, I’d even be happy to come to Myton every day again if it meant I could see you again, even just for a minute. 

I miss your smile and your laugh, I miss those blue eyes of yours and I realise that I took all those things for granted. I never really took the time to appreciate all the wonderful things that made you you. And it breaks my heart still, each day. Most days I don’t cry but others it’s unstoppable, and if I can hold it in, in bubbles under the surface until I let myself go.

It’s made me realise that it is ok to feel sad, it’s ok to breakdown and not be ok, I just have to take each day as it comes and lean on those around me. I need to allow myself time to grieve and learn how to live without you.

It’s also made me realise how important family is. How I need to take more time for all my family, Rob, F and the girls and my Dad. I need to talk to them more about what they want in the future, how they are feeling and have some of those really difficult conversations about funerals and wishes when the time comes. It’s certainly not an easy thing to discuss but we didn’t have that chance with Mum and I now know how important it is to know these things.

I want to spend more time making memories and documenting family life. And I think Mum would be happy to know that I’ve been able to find some sort of lesson in all of this crappiness!!! 

I want to thank all the amazing people I have in my life. I am sure I’d not be getting through any of this without you all. 

I am also very aware that I am just at the beginning of the grieving process even now, I’ll never be the person I was before but I hope that once I learn to live this new life, I will find a way of accepting that you’re not here anymore.